"[Mapping Fate is] made of heartbreak but so full of fascinating information
of every kind that it has the extraordinary power to transcend pain*.This is an
intense, beautiful, serious book. It reminds us that life can be awful, but that
human beings carry the capacity to be heroic beyond measure."
CAROLYN SEE, The Washington Post
"A fabulous read*.a book about love, scientific research, family fights,
duplicity, compassion, courage and pain. It is brilliantly written by one of the
principal characters in this real-life drama. You'll be riveted."
"A valuable primer in medical ethics, human genetics, personal, and even
literary style, Mapping Fate captures both the personal anguish and lifelong
ramifications of a hereditary disease."
BETTYANN KEVLES, Los Angeles Times
"Touching on science, autobiography, social criticism, feminism and more,
this is a lucid and original account of the refusal to submit to fate and the
cost that entails."
AMANDA HELLER, The Boston Sunday Globe
"[Mapping Fate] deserves a wide audience. Readers interested in the
psychological dimensions of illness, especially inherited illness, will find it
riveting*.[It] is an excellent introduction to human genetics."
ROGIN L. ALBIN, M.D., Journal of the American Medical Association