Tuyomyo, a unique work of art by Frank Gehry, will be sold to create a million dollar fund to honor Frank's late daughter. Called the Leslie Gehry Brenner Award for Innovation in Science of the Hereditary Disease Foundation, this prize will make possible the best and most cutting edge research to find treatments and cures for genetic and brain disorders.
This piece opened to rave reviews at the Salone del Mobile in Milan, April 22-27 2009!!
For more information, call the Hereditary Disease Foundation at 212-543-5667.
Download the entire Fall 2008 newsletter as a PDF file now. Table of contents includes:
Update from HD2008: “The Milton Wexler Celebration of Life” Symposium, Cambridge, MA
2008 HDF Science Funding
2009 HDF Upcoming Workshops
HDF Scientific Advisory Board New Members and Research News
The title for her Grand Rounds is “New York Neurology and the Early History of Huntington's Disease.” This will take place at the Neurological Institute of New York Alumni Auditorium, 710 West 168th Street, 1st Floor, New York, NY 10032. Hope to see you there!
JAMBO!!! THEY MADE IT!!!
Congratulations to the amazing Klimb for the Kure team! They summitted Mount Kilimanjaro around 2:30pm on Friday, the 13th and everyone made it! We're eagerly awaiting updates and photos upon their return home!!
For more information about the availability of Xenazine* (tetrabenazine) Tablets, please click here.
* Xenazine is a registered trademark of Cambridge Laboratories (Ireland) Limited.
Click below to listen to Alice Wexler's fantastic interview
on NPR on Wednesday, October 1, 2008,
where she discussed her new book,
The Woman Who Walked into the Sea: Huntington's
and the Making of a Genetic Disease and so much more!!!
She was the featured author on
The Diane Rehm Show, National Public Radio's flagship broadcast on books and critical issues of the day.
A Voice of HD—Click here for an incredibly
brave and inspiring essay read anonymously at
the August 2008 "Milton Wexler Celebration of Life"
Symposium in Cambridge, MA.
Everything I know about genomics I learned first at Hereditary Disease Foundation workshops!
Francis Collins, M.D., Ph.D.
Director, National Human Genome Research Institute
Recipient, Presidential Medal of Freedom, 2007
If one looks back in the development of human genetics in our
current form, I think the Hereditary Disease Foundation played really
the same role that the Rockefeller Foundation played in the 30s and 40s,
when it permitted the development of molecular biology. It was a small
group of people who weren't waiting around, but were giving money to
the right people, with the thought that it was sensible.
November 1, 2005
Dr. James D. Watson, Chancellor
Cold Spring Harbor Laboratory
Winner of the Nobel Prize in Physiology or Medicine in 1962
Through the years, I have been blessed to work with superb and
dedicated people, and I count the three of you, Milton, Nancy and Alice
Wexler, to be at the top of that list.
Dr. Francis S. Collins, Director
National Human Genome Research Institute
National Institutes of Health
Through the active recruitment of new ideas, new technologies and
new researchers, the Hereditary Disease Foundation has set the stage for
important progress in our understanding of HD pathology. Their commitment
to collaboration and community building within the HD field serves as a
model for all scientific groups tackling human diseases.
