Past Events

Happy and healthy holidays to you!

“Pipelines and Pathogenesis and Future Directions for the HDF”
January 24-25, 2009, Santa Monica, California

“Neuroinflammation in the pathogenesis and treatment of HD”
March 28-29, 2009, New York, New York

Alice and Nancy Wexler speak at the University of Texas San Antonio on Tuesday, November 10 and Wednesday, November 11, 2009.

Alice’s talk is entitled “Stigma, Secrecy, & Medical History: What we Learn from Huntington's disease?”

Nancy’s talk is entitled “Expansions on a Dream: From Cause to Cure of Huntington's disease.”

For more information, see UTSA's website

Read story about Alice and Nancy Wexler's talk in UTSA Today, 11/6/09

ALICE WEXLER, AMERICAN MEDICAL WRITERS ASSOCIATION BOOK AWARD WINNER, IN EAST HAMPTON – AUGUST 8, 2009

On August 8, 2009, Alice Wexler and “The Woman Who Walked into the Sea” will be among the featured authors and books at Authors Night at the East Hampton Library, East Hampton, NY. The event is a benefit for the East Hampton Library, which has a wonderful Long Island Collection of local manuscripts and photographs.

East Hampton was home, in the 19th century, to George Huntington and his father and grandfather, who practiced medicine in the town. East Hampton was also home to the families who made George Huntington's discovery possible, and who are the focus of Alice's book.

There is a reception under a tent and dinner parties in peoples' homes afterwards, where an author or two is served up for dessert!

If you are interested, check out the website at www.authorsnight.org for further information.

Tuyomyo, a unique work of art by Frank Gehry, will be sold to create a million dollar fund to honor Frank's late daughter. Called the Leslie Gehry Brenner Award for Innovation in Science of the Hereditary Disease Foundation, this prize will make possible the best and most cutting edge research to find treatments and cures for genetic and brain disorders. This piece opened to rave reviews at the Salone del Mobile in Milan, April 22-27 2009!! For more information, call the Hereditary Disease Foundation at 212-543-5667.

Registration is now open for the World Congress on Huntington's Disease,
Sept. 12-15, 2009, in Vancouver, British Columbia, Canada.

See attached flyer for more information or visit their website: www.worldcongress-hd.net
Hope to see you there!

Tuesday, May 12, 2009, 7:30pm— Nancy Wexler to give the Fifteenth UC Irvine Distinguished Lecture on Brain, Learning and Memory: “Genetic Jeopardy: Lessons Learned from Huntington's Disease”

Hoops for Hope

The 2008 “Hoops for Hope” annual Mike O'Brien Invitational basketball event, took place on December 20, 2008 at Laker Hall on the SUNY Oswego campus.

The event is named in memory of Oswego's Mike O'Brien, who, on May 1, 2005, fell to his death while attempting to summit Mount Everest in an effort to raise funds for, and awareness of, the Hereditary Disease Foundation (HDF).

All net proceeds will be donated to the Hereditary Disease Foundation in memory of Mike O'Brien and Coaches v. Cancer in memory of Jay Kelly.

See attached for details, schedule and registration information.

Find out more about Hoops for Hope—PDF format

Hoops for Hope, "The Mike O'Brien Invitational" had donated 4 scholarships ($500 each) to the participating schools. Click here for more information.

2008 Benefit Gala

Workshops

• "Dopamine in the pathogenesis and treatment of Huntington's disease," December 2-3, 2007, New York, NY
• "Venezuela Data Workshop," December 14-15, 2007, New York, NY
• "Gene Delivery and New Developments," January 26-27, 2008, Santa Monica, CA
• "Calcium in Neurodegeneration," February 5-6, 2008, Las Vegas, NV
• "The Milton Wexler Celebration of Life Symposium" August 8-10, 2008 Cambridge, MA

meetings of the HDF Scientific Advisory Board:

• January 25, 2008, Santa Monica, CA
• May 19, 2008, Los Angeles, CA
• October, 2008 - date and location, TBD

The Hereditary Disease Foundation's 5th biennial meeting, "HD2006: Changes, Advances and Good News (CAG)n" was held on August 11-13, 2006 in Cambridge, Massachusetts. For further information about the meeting, please contact Davey Mitchell at 212.928.2121 or by email.

An exciting program has been put together with a strong focus on the role of genetics and potential translational research, as well as an update on other aspects of clinical research (neuropsychology and neuroimaging), couselling and management. Our two keynote speakers: Dr David Rubinsztein, UK and Professor Michael Conneally, USA, along with our Australian colleagues, will be delivering a number of exciting updates relating to Huntington's disease.

The conference will commence on Friday 4 th August at 12.30pm with registration, followed by a half day scientific program. Thereafter, there will be an opportunity to relax poolside and enjoy a BBQ dinner with entertainment sponsored by Amarin. A full day scientific program will be run on Saturday 5 th August allowing delegates a free Sunday for travelling time to the 11 th International Congress of Human Genetics, which will be held in Brisbane (40 minutes drive) from the Radisson.

ãA Personal Story ö This Senior Project is a Personal Story for me because my father has been sick with Huntingtonâs Disease since I was in kindergarten. Four years ago when I was in 8th grade I made 100 baskets of hygiene items for the patients at the New York Columbia Presbyterian Hospital Huntingtonâs Disease Clinic. The baskets were much appreciated by all the patients. Many thought that is was very generous. This year Iâm required to do a Senior Project as a Graduation requirement and Iâve chosen to Raise Awareness and Money for Huntingtonâs Disease. Throughout this year Iâm holding an Awareness assembly, a Benefit dinner and selling key chains for awareness. All the money raised will be going to Huntingtonâs Disease Research. My goal is to raise $10,000 for the Cure. I hope to get Huntingtonâs widely known by the people of my community.ä