BBC - Venezuelan village key in search for Huntington's cure
The village of Barranquitas in Venezuela has the highest concentration of Huntington's disease in the world. The BBC's Will Grant accompanies Hereditary Disease Foundation President Nancy Wexler there as she continues her life's work to find a cure.
Click here to watch the 9 minute BBC Newsnight TV piece.
Click below to listen to the BBC Radio 4's program about Huntington's disease in Venezuela.
Read it here Or click here to read it directly from the BBC website where you can watch accompanying videos.
September, 2013: Watch this video about the Casa Hogar, a unique nursing home in Venezuela – home to the families who donated their DNA and information to find the HD gene – for the benefit of all worldwide. The Casa Hogar is staffed by their own family members. They need your support more than ever!
September 15, 2011: BUILD HOPE FOR HD:Support HD Research and the HD Community! In Venezuela, an important clinic is at risk of closing its doors due to lack of funding.
Thank you all for your support.
This campaign was a great success!
As of October, 31, 2011,
the Campaign has ended.
October 31, 2011: The Casa Hogar Amor y Fe (House of Love and Hope) has served people with Huntington's disease (HD) in Venezuela for more than a decade. HD is an incurable genetic condition causing uncontrolled movement, behavioral changes and mental deterioration. The Venezuelan families have made significant contributions to HD research and the lives of people living with HD around the world by helping scientists identify the HD gene.
Thank you for joining us as we Build Hope for HD and support the Casa Hogar! Your participation makes a difference.
Venezuelan families were featured in today’s Financial Times (August 18, 2010).
Click here for the Financial Times article and accompanying photos, "Venezuela village holds cure for hereditary illness," by Benedict Mander in Barranquitas, Venezuela.
Benedict has written thoughtfully about the families suffering from Huntington's disease in the village of Barranquitas, Venezuela. He was able to expertly capture the dignity of these wonderful people and the tragedy of their circumstances.
Nancy Wexler's visit to Venezuela is featured in the July 28, 2010 issue of Panorama, a newspaper from Maracaibo, Venezuela!
Read it here
