Jul
22
10:30 AM10:30

NJ CURE HD 2019 8th Annual Golf Classic

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You are cordially invited to the 8th Annual Golf Classic.

The event raises money for Huntington’s disease. The event includes a lunch, a full-day of golf, drinks, dinner, and a fantastic silent auction. It is held at Echo Lake Country Club, a private golf club in New Jersey that was designed by the famed architect, Donald Ross.

Huntington’s disease is a genetic disorder that robs people of their physical and cognitive abilities. The disease slowly kills brain cells leaving the afflicted individual unable to perform routine daily functions (e.g., eating, talking, walking, or getting dressed). Each child of an afflicted individual has a 50% chance of inheriting the disease. Because symptoms usually appear around midlife, those with the disease have likely already had children and passed the disease on to the next generation. The disease does not have a cure.

NJ Cure HD is a non-profit organization dedicated to raising money to find a cure and support families affected by Huntington’s disease. We welcome your support!

See the full invitation, description, list of Golf Committee Members here.

Learn more about NJ Cure HD now.

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Oct
28
6:00 PM18:00

Save the Date: Join us to Celebrate Discoveries in Neuroscience

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Please put a big star next to Monday, October 28, and save the date for the HDF Symposium and Dinner at the Harvard Club. Plan to share a fun evening with friends and family and hear from scientists who are at the forefront of finding treatments and cures for HD. Stay tuned for more details!!!

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Oct
14
10:00 AM10:00

REGISTER OR DONATE NOW! Jackie's Walk 4 HD - Conquering Huntington's disease one step at a time

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Help make a meaningful impact TODAY and pave the way for a brighter TOMORROW! Together, we can conquer HD one step at a time. Join Jackie's Walk 4 HD!

Beautiful Jackie Hamilton fought a long battle with Huntington's disease (HD), but she left a legacy of love and compassion to her family and many friends. In honor of Jackie, her daughter Gabrielle Hamilton will hold the 2nd Jackie's Walk 4 HD on Sunday, October 14, 2018 at 10am at Glen Island Park in New Rochelle, NY. As part of the Hereditary Disease Foundation's 50th Anniversary lineup of events, come and join Gabrielle, family and friends and celebrate this memorial walk for Jackie Hamilton whose life on earth was too short, but never forgotten.

All net proceeds from the walk will benefit the Hereditary Disease Foundation and the Huntington's Disease Society of America Center of Excellence at Columbia University which carries out numerous observational research and clinical trials for people with HD and those at risk. Monies will help fund HD research and treatments, and support patient and family care and advocacy.

ABOUT THE ORGANIZERS

This event is organized by the Hereditary Disease Foundation under the direction of Gabrielle Hamilton, LCSW-R, and committees.

GABRIELLE HAMILTON: Gaby has been an HD advocate since 1994. Gabrielle’s mother, grandmother and aunt were all afflicted with Huntington's disease and she herself is at-risk. Gabrielle often explores the topic of "hope in spite of illness" at speaking engagements. She has been an avid volunteer at the Hereditary Disease Foundation and the Huntington's Disease Society of America (HDSA) for many years.

HEREDITARY DISEASE FOUNDATION: Since 1968, the Hereditary Disease Foundation has funded innovative research towards curing Huntington’s disease and impacting other brain disorders. 

ABOUT HUNTINGTON'S DISEASE

Huntington's disease is a dominantly inherited, neurodegenerative disease causing irreversible decline in mood, memory and movement. There is currently no cure. Each child of an affected parent has a 50% risk of inheriting the same lethal affliction. HD usually strikes between the ages of 30 to 40, in an individual’s prime productive years, though children as young as two years old and adults in their eighties may also develop symptoms. HD’s impact on patients and their loved ones is devastating. Our greatest hope for advanced treatments and an eventual cure relies heavily upon research.

ABOUT THE WALK

It's a short walk - go at your own pace. Fun for the whole family! Entertainment, raffle prizes and more!

 

The Hereditary Disease Foundation gratefully acknowledges additional support provided by:

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You may also contact Gabrielle directly at email: gabriellehamilton@hotmail.com

The Hereditary Disease Foundation is a 501(c)(3) nonprofit public charity. Your generous tax-deductible donation is greatly appreciated.

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